WEBVTT

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You

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Oh

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Oh

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Okay

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Kids sure have it easy

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Lots of fun all play no troubles

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nothing to worry about

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What do you mean kids don't have any problems every kid in this camp has problems

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They have cancer or some other kind of disease

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And it's worse than most people

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My name is Lou Ali I

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Have been fat it became you and I've had it for a year and a half

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Doesn't bother me that much

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The only reason it does is because I have my mother my father's keep me happy and that I'm here at camp

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We want to keep it going I was diagnosed with cancer rhabdomyo, so karma and

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They treated me with chemotherapy radiation

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Simon says make a funny face again. I

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Had rhabdomyo, so sarcoma, I'm blind in my right eye and I've got peripheral vision in my left eye

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I

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Didn't really know remember much from

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Going when I had the cameo I was going to the hospital. It was like I lost my memory

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Did the kids make fun of you?

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Yeah, oh, no sometimes yeah, but mostly I wore a wig

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Oh

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My illness is leukemia and I had since I was eight I'm 13 now

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And I had a relapse two years ago and I'm off all my medicine except the penicillin because had my spleen took an out

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Well I had a lump below my knee and I couldn't run because it hurt so bad

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So my mom took me to the doctor and after about four days of testing

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When I couldn't walk on my leg at all

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They took a biopsy of it and then they

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Took me to a different hospital where they took some more tests for about a week I

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Had a weekend pass and then about four days later. They amputated my leg

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They told me that my disease was osteogenic sarcoma, which means that I had bone cancer. I

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had the amputation and chemotherapy and

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I start about four more treatments of chemotherapy left

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The camps really fun it's

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You know it makes you feel like you can do things

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By on your own not having your parents leading you around or something

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activities you really like your volleyball and

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arts and crafts I like fishing and

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Basic water rescue, I'm very happy with my life

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To me once you get used to it, you know things aren't

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Much different than they were before I got sick. My father said that I could work for him

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When I get older if I can't if I can't find any other job

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And

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My parents I they're having a really tough time getting used to this

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So I have to I always try not to complain and I was trying to do better so that they don't

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Feel that I'm having a tough time

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Because they don't know how I feel and when this happens all I do is I just keep it to myself

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And if I have friends around I tell them about it

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it just gets over with pretty soon it never lasts as long as

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as other things would like

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Embarrassing moments or anything this permanent leg

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Which is held on by suction and when they first put it on I didn't think I'd ever get my leg out again because it just

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Crung so hard and they gave me a belt to use at first that was hooked around the waist and

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Then when I got used to they had my dad take it off

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Well it doesn't have too much effect with my true friends, but yeah, there's lots of people that stare and

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The little kids are the ones that make the most comments, but I don't mind it and you know it I really don't

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Because they don't have what I have and then there's not that many people that have it

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And they they just have to figure out what's going on

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In your head take one hand out

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Fine so take both hands down, but keep your funny face. I like camp a lot. It's really fun

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It's it gives you something special to do instead of sitting home

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Not having much to do it all

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we had a swimming test that we have to take before we can go in a canoe and

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There's a girl named Patty that passed it and there's also two boys and myself that passed it

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Well, I was scared to take the swimming test at first

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But when I got in the water it wasn't as bad as I thought it would be

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I

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So the activities are vibe are arts and crafts. They're swimming

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They have special programs in the evening. They're singing

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This is the first year. I've been at camp and I hope to come back next year

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I

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You